Share Your Story

Each quarter, the Share Your Story program highlights the achievements of a new Share Your Story Star who has found a way to overcome epilepsy through activities such as sports, academics or charity involvement.

It is an empowering experience to Share Your Story with Seize The World. Please click here to jump to the contact form at the bottom of this page—we’re excited to hear from you!

Abby (middle) and Family

Miracle Triplet Defies the Odds

Posted on Aug 9th, 2017 - By Joshua Bourn - 0 Comments

Gayle Brisbane, mother of premature triplets, describes daughter Abby’s fight for her life by overcoming an E-coli infection as a baby in a…

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Susan and her trike

Two Wheels To Three Wheels After Epilepsy Diagnosis

Posted on Mar 17th, 2017 - By Joshua Bourn - 0 Comments

Co-authored by: Susan Reed and Joshua Bourn Meet Susan Reed, 71, from Tucson, Arizona. Susan was diagnosed with Temporal Lobe Epilepsy (TLE) when…

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Cecilia (right) and Emily (left) share a warm embrace

A TALE OF 2 ATROCITIES – (Special Edition)

Posted on Jun 26th, 2016 - By Joshua Bourn - 0 Comments

Meet Cecilia Garcia, 44, and her daughter, Emily Garcia, 18. Emily is among the more than 80% of reported women with intellectual disabilities who…

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Danielle and Nate - College Sweethearts

Carpe D-Watkins: Seize Your Attitude

Posted on Feb 23rd, 2016 - By Joshua Bourn - 1 Comment

Imagine - you’re 15 years old and about to walk through the magical gates of Disneyland in beautiful California. Suddenly, you feel yourself start…

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Meet Nathan Schoonover and his new best friend, Bella

Paws for The Cause

Posted on Oct 6th, 2015 - By Joshua Bourn - 2 Comments

On the eve of meeting his first seizure assistance dog, 10-year-old Nathan Schoonover, from Tomah, Wisconsin, excitedly anticipates life with his…

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Stephen Allen

Stephen Allen Bikes the Colorado Trail

Posted on Sep 21st, 2014 - By Ian - 2 Comments

It has been over 4 years since Seize the World Foundation founder, Stephen Allen, completed his round the world bicycle tour to raise awareness for…

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(Paige = Center) I shared a room with my sister for 18 years. She has seen almost every seizure I have had. My siblings have been there the whole way, and they have always made me feel that Im not alone. Though we fought when we were kids, they have become two of my closest friends.

Dreaming Big, Hoping Bigger

Posted on Jan 1st, 2014 - By STW_Admin - 4 Comments

Paige Wilcox is a young woman from Denver who has lived with epilepsy since she was very young, and who met with STW volunteers at the Epilepsy…

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Brad Rinehart crossing the finish line of the Denver Rock 'n' Roll Marathon.  Completing a marathon had been a long-term goal for Brad.  He experienced three seizures on the morning of the race.

Brad Rinehart on The Rock ‘n’ Roll Marathon

Posted on Dec 2nd, 2013 - By Stephen - 0 Comments

This month, Seize The World veteran and endurance athlete Brad Rinehart took some time to speak about a recent milestone: completing the Denver Rock…

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Sam Inglese enjoys the sun on Pearl Street in his hometown of Boulder, Colorado.

Sam Inglese: Greeting Epilepsy

Posted on Nov 2nd, 2013 - By STW_Admin - 2 Comments

Sam Inglese is a Producer / Director with Ambitious Minds Productions, and his documentary "Spirit of a Subculture" about Chicago bike messengers was…

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Ron Mollinga says that, as a person living with epilepsy, it is important to find activities that require mental focus.  He loves to play the guitar and to ride his bike.

Ride Your Own Course

Posted on Oct 1st, 2013 - By STW_Admin - 6 Comments

Ron Mollinga lives in Port McNeill in British Columbia, Canada, where he works as a teacher.  He had his first seizure at age 22 and then continued…

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Jessica Veach stands with her husband, Colin, at Kerry Park in Seattle. Jessica's seizures forced her to give up driving, and to take leave from her teaching career.  But just last year, Jessica had brain surgery to stop her seizures, and the future looks bright.  Today, she devotes herself to her job with the Epilepsy Foundation Northwest, and to helping others overcome the challenges of epilepsy.  
Jessica wrote the following article to share her experiences with epilepsy and about her recent brain surgery.

Jessica Veach—Seizureless in Seattle

Posted on Sep 7th, 2013 - By STW_Admin - 1 Comment

Jessica's seizures forced her to give up driving, and to take leave from her teaching career. But just last year, Jessica had brain surgery to stop…

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While in college, Craig discovered that he had epilepsy after crashing his car during a seizure.

I have a hole in my head

Posted on Aug 15th, 2013 - By STW_Admin - 0 Comments

The room grows quiet.  Sharing a secret about myself can sometimes break the ice, but it doesn't work too well when I tell people about my brain…

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Delaney Bjork at Bonforte park in Colorado Springs

Stand Up to Epilepsy

Posted on Jul 24th, 2013 - By Ian - 3 Comments

Delaney Bjork comes across as your average fifteen-year-old teenager. She smiles a lot, she is vibrant, and she is excited about her future. Right…

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Nathan Alexander at the Rock 'n' Roll Marathon in Savannah, GA

Nathan Alexander: SEIZ ure LIFE

Posted on Jun 21st, 2013 - By Seth - 0 Comments

Thirty year old Nathan Alexander of Knoxville, Tennessee has always been athletic, whether it was kayaking in the Gulf of Mexico, swimming or hiking.…

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Kelley Sperry with her new seizure response dog, Kobi.

Kelley Sperry: Get Up Every Day

Posted on May 14th, 2013 - By Stephen - 6 Comments

How many times in your life have you faced a physical or emotional challenge that demanded everything could give?  Kelley Sperry faces that kind of…

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Sherry Dariotes pedals in the Flying Wheels Summer Century ride in Washington.

Rolling Over Epilepsy

Posted on Apr 7th, 2013 - By Stephen - 0 Comments

Sherry Dariotes lives with her husband Nick in Redmond, Washington, not far from Seattle.  She has worked for the past fifteen years…

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StevenRiss (1)

Steven Riss: Perseverance Against Epilepsy

Posted on Mar 1st, 2013 - By Stephen - 0 Comments

Steven Riss sometimes can't believe that it's possible to simply get in a car and drive.  It doesn't matter if the 27-year-old is driving around his…

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A Thicker Skin

Posted on Feb 11th, 2013 - By Ian - 3 Comments

In September of 2009, Seize the World interviewed Deanna Adams just after she completed the Great Divide Mountain Bike Race (GDMBR).  Deanna is a…

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Chelsea Hutchison

Chelsea’s Legacy

Posted on Dec 31st, 2012 - By Stephen - 1 Comment

Julie and Doug Hutchison lost their sixteen–year–old daughter Chelsea on April 19, 2009.  She passed away after a seizure in her sleep.  Sudden…

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Tina at Coffee at the Point Cafe in Denver

Paying It Forward

Posted on Dec 13th, 2012 - By Ian - 3 Comments

Tina White is a 36-year-old mother of two living in Denver, Colorado.  Tina also has epilepsy and suffers from tonic-clonic (grand mal) and complex…

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Profile

There Is No Strength Where There Is No Struggle

Posted on Nov 7th, 2012 - By Seth - 3 Comments

Note - Thanks go out to Chelsea Hutchison Foundation for hosting Chelsea's Epilepsy Walk for SUDEP Awareness, which is where we were able to meet…

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Never Give Up

Posted on Oct 1st, 2012 - By Stephen - 1 Comment

Brad Rinehart's motto is, “never ever give up.” He lives in Aurora with his wife Tracy and their two dogs Magnum and Mocha. They were married in…

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dwinsor1

Conquering Your Fear

Posted on Sep 13th, 2012 - By Seth - 3 Comments

An avid traveler, Debra Winsor epitomizes the term citizen of the world. The Minnesota native and recent Boulder resident is currently enjoying life…

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John Olson 1

Faith In Me

Posted on Aug 1st, 2012 - By Ian - 2 Comments

John Olson has had epilepsy since he was four years old.  He has also summited eleven of Colorado’s 14,000-foot peaks, also known as…

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lucasrichmond1

Find The Things That Bring You Joy

Posted on Jun 1st, 2012 - By Stephen - 0 Comments

Lucas Richmond has had a seizure while speaking before an audience at the Pepsi Center. He has also had a seizure mid-dive from a 3m diving board…

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richardshane1

Richard Shane’s Brilliant Outcome Through Surgery and Community Involvement

Posted on May 7th, 2012 - By Seth - 1 Comment

Over the course of 22 years Richard Shane estimates that he has experienced 2,500 simple partial and generalized seizures. However, thanks to…

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TrishVallely1

Epilepsy’s Not Gonna Have Me!

Posted on Apr 1st, 2012 - By Beth - 1 Comment

“I might have epilepsy, but it’s not gonna have me!” Despite having epilepsy, Trish Vallely, 52, is an extremely active volunteer in…

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Channing1

Finding Your Solution

Posted on Mar 1st, 2012 - By Stephen - 0 Comments

Channing Seideman is an 18-year-old Colorado native who has lived with epilepsy since age 10. Seize The World fans may remember Channing from her…

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Jake1

Epilepsy is Not Who You Are

Posted on Feb 1st, 2012 - By Stephen - 1 Comment

Jake Quigley is 39 years old and lives in Hanover, New Hampshire with his wife Jeanie.  He is a non-profit consultant and he owns a personal &…

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djensensmall

David Jensen: Balance Through Community

Posted on Dec 31st, 2011 - By Stephen - 2 Comments

         David Jensen is a twenty-two-year-old student at the Community College of Denver.  Before starting at CCD, he went to Denver's South…

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Deanna Adams at the finish of the Great Divide Bike Race.

Q+A With Deanna Adams after the Great Divide

Posted on Sep 18th, 2009 - By Stephen - 0 Comments

Deanna made the decision to race the GDMBR on a fixed gear bicycle.  She has become the youngest woman to race the GDMBR on a fixie.  Seizures did…

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Channing Seideman jumping on her horse, Lexus.

You Only Live Once

Posted on May 2nd, 2009 - By Stephen - 0 Comments

Channing Seideman is a sixteen year old who lives in Aspen, rides horses, coaches freestyle skiing, and deals with epilepsy on a daily basis.  Her…

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DeannaAdams1

Doubt Kills Dreams

Posted on Nov 20th, 2008 - By Stephen - 0 Comments

Deanna Adams looking chipper after 43 hours and 17 minutes of racing in the Furnace Creek 508. She is the youngest female finisher to have completed…

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Tell Us Your Story:
Please fill out the following contact form and a STW volunteer will get in touch with you within three days to talk about your story. We publish stories each quarter about people from the epilepsy community who are leading active and fulfilling lives as well as those who enable them to do so—family members, loved ones, volunteers and healthcare providers.

Please use this form to introduce yourself or to just say hi, or if you would like to introduce someone you know who might be a great Share Your Story Star!

Thank you for your interest in Share Your Story. We can’t wait to hear from you.

 

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