Epilepsy Organizations

Seize The World recommends the following organizations to people who live with seizures:

 

EpilepsyResources10The Epilepsy Foundation is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure. 
EpilepsyResources5Citizens United for Research in Epilepsy funds seed grants to young and established investigators to explore new areas and collect the data necessary to apply for further funding by the National Institutes of Health (NIH). To date, CURE has awarded 134 cutting-edge projects.  CURE has helped to bring added public awareness to epilepsy, especially through the work of its founder, Susan Axelrod.
EpilepsyResources9The American Academy of Neurology (AAN), established in 1948, is an international professional association of more than 25,000 neurologists and neuroscience professionals dedicated to promoting the highest quality patient-centered neurologic care.  Their bi–monthly magazine, Neurology Now, is a useful resource for patients and families looking for news about neurological research, treatment and care.

EpilepsyResources8The Epilepsy Foundation of Colorado leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy.  The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure.  
EpilepsyResources3The Chelsea Hutchison Foundation is named for Julie and Doug’s beloved daughter who died in her sleep during a seizure in April of 2009.   CHF raises awareness about Sudden Unexplained Death in Epilepsy (SUDEP) and provides trained seizure–response dogs as well as Emfit and SmartWatch monitors to people with epilepsy.  CHF is based in Denver, CO and holds events throughout the country.
EpilepsyResources1The University of Colorado, Denver Neurology Dept. offers clinical services in all areas of neurology including epilepsy.  The Anschutz Clinic in Aurora, Colorado is a Class IV Epilepsy Treatment Center and the faculty at the University of Colorado, Denver is composed of 45 neurologists.
EpilepsyResources7Outdoor Mindset unites and inspires people affected by neurological challenges through a common passion for the outdoors.  OM connects people through a membership community, providing one-on-one inspiration through their Guide program.  They also connect members through Outdoor Meetup Groups.  OM is based in Boulder, CO and they also hold Meetups throughout the country.
EpilepsyResources98Epilepsy Association of Oklahoma — Since 1978, the Epilepsy Association of Oklahoma has been incorporated as a nonprofit health agency with the mission of helping Oklahomans who have epilepsy and their families.
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