Kelley Sperry: Get Up Every Day

How many times in your life have you faced a physical or emotional challenge that demanded everything could give? Kelley Sperry faces that kind of a challenge every single day. Parry Romberg Syndrome has been wasting away tissue on half of her face and brain, causing intense migraine headaches, strokes and a severe seizure disorder.

Rolling Over Epilepsy

Sherry Dariotes has lived with epilepsy for more than thirty years, and even though two brain surgeries have impaired her balance, one of her favorite activities is riding her 3-wheeled Ice Trike. She knocks out a lot of miles too.

Steven Riss: Perseverance Against Epilepsy

Steven Riss sometimes can’t believe that it’s possible to simply get in a car and drive. That is because Steven has epilepsy. And he remembers well when he lost the freedom to drive at the beginning his senior year of high school.

Chelsea’s Legacy

Julie and Doug Hutchison lost their sixteen–year–old daughter Chelsea on April 19, 2009. She passed away after a seizure in her sleep. Sudden Unexpected Death In Epilepsy, or “SUDEP” affects roughly 1 in 1000 people with epilepsy—1 in 100 with uncontrolled seizures. Chelsea’s story emphasizes the urgency and importance of finding cures for epilepsy. And it also reveals how an amazing family can rise to face epilepsy’s most awful challenge.

Never Give Up

Brad Rinehart has overcome epilepsy’s greatest challenges with support from his amazing wife Tracy. Read about their story and also about how running has been a source of fulfillment for Brad.

Finding Your Solution

Channing Seideman is an 18-year-old Colorado native who has lived with epilepsy since age 10. Seize The World fans may remember Channing from her 2009 feature, “You Only Live Once.” Channing is very good at figuring out ways around her seizures so that she can lead a fulfilling life. The following story is based on Channing’s phone […]

Epilepsy is Not Who You Are

Jake Quigley is 39 years old and lives in Hanover, New Hampshire with his wife Jeanie.  He is a non-profit consultant and he owns a personal & professional coaching firm called Inspired Shifts.  Jake has epilepsy, but he subscribes to the idea that, “epilepsy is something you have, it’s not who you are.”  Jake lives […]

David Jensen: Balance Through Community

         David Jensen is a twenty-two-year-old student at the Community College of Denver.  Before starting at CCD, he went to Denver’s South High School.  David’s life is similar to those of many of his classmates at CCD – he is in his early twenties and he graduated from high school in the Metro […]

Q+A With Deanna Adams after the Great Divide

Seize The World

 

If you have been following Seize The World, then you remember Deanna Adams.  Deanna is a 21 year old bicycle racer and general adventurer from Prescott, AZ who lives with idiopathic generalized epilepsy – in other words, the cause of her seizures is unknown.  To read more about Deanna, check out the story Doubt Kills Dreams.  The story describes her experience racing the Furnace Creek 508, a gruelling 500-mile 48 hour bicycle race through the Mojave desert, and talks about her experience preparing for an upcoming race along the Great Divide Mountain Bike Route (GDMBR).  Now, Deanna has completed the GDMBR, and checked in with Seize the World about the experience.