Dreaming Big, Hoping Bigger
As I sit here and think about it now, I don’t remember a day without epilepsy. I started having tonic clonic seizures when I was ten years old. I was sick one night and sleeping in my parents bedroom so they could take care of me, and they witnessed for the first time a seizure and I was taken to the hospital. The doctors said that it was most likely a one time thing.
Sam Inglese: Greeting Epilepsy
I intend to attract and thus educate the rest of the population by producing a documentary about us and that is not strictly limited to medical topics. No doctors, no medications, no numbers. Just us and our stories.
Ride Your Own Course
The children I’ve taught over the past twenty years never got into a panic when I had seizures. I think this was a good experience for them because they learned about epilepsy and because they got to see that there’s more than one type of seizure. My position has also given me the opportunity to teach my students about the different types of seizures and about how to help those with epilepsy.
Jessica Veach—Seizureless in Seattle
I checked into the hospital on July 11, 2012. During the first procedure they implanted EEG electrode probes in my brain. They then waited for me to have seizures. After eight days the doctors decided they had enough data and were confident that the focal point of my seizures was on my right temporal lobe. On July 19, 2012 I had my right temporal lobe removed.
I have a hole in my head
Casual conversation regarding epilepsy often begins with “when was your first one?” For me this is slightly difficult to explain. If the person is simply being polite, or if they are in a hurry, I will describe my first tonic clonic seizure. However, when I can tell that they truly wish to know about my situation, I will go into detail about the year leading up to my first seizure.